Rehabilitation and habilitation of disabled children: A review

Cover Page

Cite item

Full Text

Abstract

The article presents approaches to the habilitation/rehabilitation of disabled children in Russia and in the countries of the European Union. The areas of rehabilitation, rehabilitation/habilitation activities that disabled children in the Russian Federation need are shown, and the legislative framework is presented. The data on the need for children with disabilities in rehabilitation are given. Research into pediatric rehabilitation care is essential to develop proper policies, programs, guidelines and resource allocation. The lack of evidence-based data comparing different national health systems is a major barrier to decision making in various European countries. To solve this problem, paediatricians and other healthcare professionals need to collect experimental and evidence-based data on the quality of rehabilitation care throughout Europe.

Full Text

Restricted Access

About the authors

Anait K. Gevorkyan

Pirogov Russian National Research Medical University; Russian Medical Academy of Continuous Professional Education

Author for correspondence.
Email: anahit.allerg@mail.ru
ORCID iD: 0000-0002-2731-1349

Cand. Sci. (Med.)

Russian Federation, Moscow; Moscow

Galina V. Volynets

Pirogov Russian National Research Medical University; Federal Bureau of Medical and Social Expertise

Email: volynec_g@mail.ru
ORCID iD: 0000-0002-5413-9599

D. Sci. (Med.)

Russian Federation, Moscow; Moscow

References

  1. Дымочка М.А. Вопросы совершенствования нормативно-правового регулирования комплексной реабилитации и абилитации инвалидов. Сб. материалов научно-практической конференции «Совершенствование межведомственного взаимодействия в рамках разработки и реализации индивидуальной программы реабилитации и абилитации инвалида (ребенка-инвалида)» в рамках реализации Государственной программы Российской Федерации «Доступная среда» на 2011-2020 годы. М.: Минтруд России, 2017; с. 7-16 [Dymochka MA. Voprosy sovershenstvovaniia normativno-pravovogo regulirovaniia kompleksnoy reabilitatsii i abilitatsii invalidov. Sb. materialov nauchno-prakticheskoi konferentsii “Sovershenstvovaniie mezhvedomstvennogo vzaimodeistviia v ramkakh razrabotki i realizatsii individual’noi programmy reabilitatsii i abilitatsii invalida (rebenka-invalida)” v ramkakh realizatsii Gosudarstvennoi programmy Rossiiskoi Federatsii “Dostupnaia sreda” na 2011-2020 gody. Moscow: Mintrud Rossii, 2017; p. 7-16 (in Russian)].
  2. Федеральный Закон от 24.11.1995 №181-ФЗ «О социальной защите инвалидов в Российской Федерации». Режим доступа: http://www.kremlin.ru/acts/bank/8523. Ссылка активна на 12.12.2015 [ Federal'nyi Zakon ot 24.11.1995 №181-FZ «O sotsial'noi zashchite invalidov v Rossiiskoi Federatsii». Available at: http://www.kremlin.ru/acts/bank/8523. Accessed: 12.12.2015 (in Russian)].
  3. World Health Organization. Health topics: rehabilitation. Available at: http://www. who.int/topics/rehabilitation/en/ Accessed: 12.12.2015.
  4. Burkett KW. Trends in pediatric rehabilitation. Nurs Clin North Am. 1989;24(1):239-55.
  5. Sperl W, Nemeth C, Fülöp G, et al. Rehabilitation für Kinder und Jugendliche in Österreich. Monatsschr Kinderheilkd. 2011;159:618-26. doi: 10.1007/s00112-010-2324-z
  6. Allgemeines Sozialversicherungsgesetz fuer Oesterreich (ASVG). Available at: https://www.ris.bka.gv.at/GeltendeFassung.wxe?Abfrage=Bundesnormen& Gesetzesnummer=10008147. Accessed: 19.01.2016.
  7. Law for care, social integration and rights of individuals with disabilities. Gazzetta Ufficiale, Serie Generale n.39 del 17-2-1992 – Suppl. Ordinario n. 30. Available at: http://www.gazzettaufficiale.it/eli/ id/1992/02/17/092G0108/sg. Accessed: 20.01.2016.
  8. European disability strategy (2010–2020). UEur-Lex, Summaries of EU legislation. Available at: http://eur-lex.europa.eu/legal-content/EN/TXT/HTML/?uri=URISERV:em0047&from=IT. Accessed: 20.01.2016.
  9. UNICEF Fact Sheet: Summary of the rights under the Convention of the Rights of the Child. Available at: http://www.unicef.org/crc/files/Rights_overview.pdf. Accessed: 12.12.2015.
  10. Duffner U, Sauter S, Bergsträsser E, et al. Oncologic after-care – a patient-oriented concept. Basic diagnostic plan for pediatric oncology patients. Klin Padiatr. 1995;207(4):193-203. doi: 10.1055/s-2008-1046538
  11. Goldstein SL. Acute kidney injury in children: prevention, treatment and rehabilitation. Contrib Nephrol. 2011;174:163-72. doi: 10.1159/000329394
  12. Martinuzzi A, Salghetti A, Betto S, et al. The International Classification of Functioning Disability and Health, version for children and youth as a roadmap for projecting and programming rehabilitation in a neuropaediatric hospital unit. J Rehabil Med. 2010;42(1):49-55. doi: 10.2340/16501977-0468
  13. Schupp W, Ackermann H. Konzept der Behandlungs- und Rehabilitationskette nach Schlaganfall (Neurologisches Phasen-Modell). Z Allgemeinmed. 2000;76:173-7.
  14. Oepen J. Rehabilitation für Kinder und Jugendliche. In:. Sozialpaediatrie in der Praxis. Eds. Bode H, Strassburg HM, Hollmann H. Munich, Germany: Elsevier, 2013; p. 531-50.
  15. Deutsche Gesellschaft fur Sozialpaediatrie und Jugendmedizin e.V. Sozialpaediatrische Zentren. 2015. Available at: http://www.dgspj.de/institution/sozial paediatrische-zentren/ Accessed: 15.10.2022.
  16. Sereni F. L’Assistenza al bambino con disability a e malattie croniche. Prospet Pediatr. 2012;42:185-91.
  17. Oddy M, da Silva Ramos S. The clinical and cost benefits of investing in neurobehavioural rehabilitation: a multi-centre study. Brain Inj. 2013;27(13-4):1500-7. doi: 10.3109/02699052.2013.830332
  18. Ehrich JH, Wolff G. Renal transplantation in children with Down syndrome. Pediatr Transplant. 1998;2:182-4.
  19. Rizzoni G, Ehrich JH, Broyer M, et al. Rehabilitation of young adults during renal replacement therapy in Europe. 1. The presence of disabilities. Nephrol Dial Transplant. 1992;7(7):573-8. doi: 10.1093/ndt/7.7.573
  20. Ehrich JH, Rizzoni G, Broyer M, et al. Rehabilitation of young adults during renal replacement therapy in Europe. 2. Schooling, employment, and social situation. Nephrol Dial Transplant. 1992;7(7):579-86. doi: 10.1093/ndt/7.7.579
  21. Ehrich JH, Kerbl R, Pettoello-Mantovani M, Lenton S. Opening the Debate on Pediatric Subspecialties and Specialist Centers: Opportunities for Better Care or Risks of Care Fragmentation? J Pediatr. 2015;167(5):1177-8.e2. doi: 10.1016/j.jpeds.2015.07.060
  22. Whitney R, Hilton CL. Intervention effectiveness for children and youth. Am J Occup Ther. 2013;67(6):e154-65. doi: 10.5014/ajot.2013.008557

Supplementary files

Supplementary Files
Action
1. JATS XML
Download

Copyright (c) 2024 Consilium Medicum

Creative Commons License
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
СМИ зарегистрировано Федеральной службой по надзору в сфере связи, информационных технологий и массовых коммуникаций (Роскомнадзор).
Регистрационный номер и дата принятия решения о регистрации СМИ: серия ПИ № ФС 77 - 74329 от 19.11.2018 г.